Introduction
- Beckwith-Wiedemann Syndrome (BWS) is an overgrowth disorder.
- The syndrome is usually sporadic, but may be inherited.
- The incidence of BWS has been reported as approximately 1:15,000 births
- The clinical picture of this syndrome can vary from mildly to greatly affected.
- The most common features are a large tongue, an abdominal wall defect and increased growth, but there are many others.
- These children are at risk for developing various types of tumours.
BWS Support Group - UK
This was started in 1990 by a group of parents with BWS children to share problems and information and to act as a self-help group. It aims to promote both public and professional awareness of BWS and to support and encourage research. The group has links with BWS groups in Holland and America. For further information about the group please contact:
Bob and Gill Baker
Beckwith Wiedemann Support Group
The Drum and Monkey
Hazelbury Bryan
Dorset DT10 2EE
Tel: 01258 817573 (evenings) 07889 211000 (mobile)
Fax: 01202 205325
E-mail: rbaker5165@aol.com
BWS Support Group - Australia
BWS Support Group-Australia
10 Glenside Street
Balgowlah Heights NSW 2093
Phone: 02 99485466
E-mail: hawesfam@bigpond.com
Disclaimer:
All information on this site is non-professional advice only and is not meant to replace the medical expertise of your doctor. The Beckwith-Wiedemann Support Group is not responsible for any errors or misinformation. Please consult your doctor for more information on how best to treat your child. This is especially important as the clinical features of each child with BWS vary enormously and may require different management and treatment.
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