Working with great Ormond Street Hospital BWS Macroglossia Service
- Beckwith-Wiedemann Syndrome (BWS) is an overgrowth disorder.
- The syndrome is usually sporadic, but may be inherited.
- The incidence of BWS has been reported as approximately 1:15,000 births
- The clinical picture of this syndrome can vary from mildly to greatly affected.
- The most common features are a large tongue, an abdominal wall defect and increased growth, but there are many others.
- These children are at risk for developing various types of tumours.
BWS Support Group – UK
- Put you in touch with other parents who live nearby
- Help with answers to questions about BWS
- Help with information sources.
All our services are completely free and we will never release your details except to other parents of BWS children and only then with your permission.
For further information about the group please contact:
Bob and Gill Baker
Beckwith Wiedemann Support Group
The Drum and Monkey
Dorset DT10 2EE
Tel: 01258 817573 (evenings)
07889 211000 (mobile)