Links

General

Care for a Family

Great Ormond Street Hospital

Italian BWS Site

Rare Disorders

Screening for Wilms Tumour in children with Beckwith-Wiedemann Syndrome or idiopathic hemihypertrophy

UK Self Help

University of Washington article on BWS

US BWS Support Group

US BWS

Contact a Family www.cafamily.org.uk

Siblings www.sibs.org.uk

Netbuddy www.netbuddy.org.uk

Relate for parents www.relateforparents.org.uk

Genetics

British Society for Human Genetics

The Genetics Interest Group

UK Genetic Testing Network

Hemihyperplasia (hemihypertrophy)

Footwear for odd sized feet

Isolated hemihyperplasia

Hemihypertrophy support  www.hemisupport.com/

Wilms Tumour

List of resources

Wilms’ Tumor and Other Childhood Kidney Tumors

Macmillian information  www.macmillan.org.uk/Cancerinformation/Cancertypes/Childrenscancers/Typesofchildrenscancers/Wilmstumour.aspx

CLICSargent information
www.clicsargent.org.uk/Aboutchildhoodcancer/Conditions/Wilmstumour

Hepatoblastoma

Liver tumours in children – Factsheet

Royal Mardens Information
www.royalmarsden.nhs.uk/cancer-information/children/pages/hepatoblastoma.aspx

Abdominal Wall Defects

Information on Exomphalos www.geeps.co.uk/

www.gosh.nhs.uk/EasySiteWeb/GatewayLink.aspx?alId=84265

Hyperinsulism

www.touchbriefings.com/pdf/3043/hussain.pdf

BWS Support Groups Outside the UK

Australia

BWS Support Group-Australia
10 Glenside Street
Balgowlah Heights NSW 2093
Phone: 02 99485466

E-mail: hawesfam@bigpond.com

Switzerland

http://bws-schweiz.ch/

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